WHY WE CALL OURSELVES THE #MILLIONSMISSING
#MillionsMissing was coined by a community member to represent the millions of people missing from their lives due to ME – missing from their careers, missing from time spent with family and friends, missing simple pleasures like sitting in the sun or taking a walk. We are missing because our governments have chosen to neglect us. We are missing millions of research dollars; we are missing educated clinicians; we are missing care and compassion; we are missing an urgent response from our governments.
The pandemic has been devastating for our community, quadrupling the number of people with ME from an estimated 1.5 million pre-pandemic to an estimated 9 million people today. The majority of people develop ME following an infectious trigger, such as a virus, so this outcome is no surprise, and the ME community was sounding the alarm at the start of the pandemic.
THE IMPACT OF #MILLIONSMISSING
The #MillionsMissing movement has galvanized the community to fight for health equality for people with ME. The energy we display during our global protest transforms into #MEAction-supported coalitions of volunteers who work on advocacy projects throughout the year.
#MillionsMissing also serves as a great opportunity to educate the press about ME. We’ve told our story to the press 500 times over the course of the past eight protests, including in major news outlets like the BBC, CNN, US News & World Report, The New York Times and The Guardian.
Here are some of our past #MillionsMissing wins: